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Consent and community engagement in diverse research contexts: reviewing and developing research and practice

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Bull, Susan, Cheah, Phaik Yeong, Lwin, Khin Maung, Marsh, Vicki, Molyneux, Sassy, Parker, Michael, Theobald, Sally ORCID: https://orcid.org/0000-0002-9053-211X, Bandewar, Sunita, Calazans, Gabriela, Chipasula, Tamara, Chheng, Kheng, Davies, Alun, Dunn, Michael, Faiz, M.A, Imrie, John, Kamuya, Dorcas, Kerasidou, Angeliki, Lavery, James V., Lindegger, Graham, MacPherson, Eleanor, Muga, Charles T., Nakibinge, Stephen, Ndebele, Paul, Sadalaki, John, Seeley, Janet, Sheehan, Mark, Twine, Rhian and de Vries, Jantina (2013) 'Consent and community engagement in diverse research contexts: reviewing and developing research and practice'. Journal of Empirical Research on Human Research Ethics: An International Journal, Vol 8, Issue 4, pp. 1-18.

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Abstract

Consent and community engagement (CE) in health research are two aspects of a single concern—that research is carried out in a respectful manner where social value is maximized. There are important overlaps and interdependencies between consent and CE; for example, CE can provide insights into how best to tailor consent to context and can be an important component of consent processes. Engaging communities can also have intrinsic and instrumental value beyond consent; for example, as a means of showing respect and identifying appropriate ways of working respectfully. In this paper we critically examine how CE and consent processes are characterized, conducted, and evaluated in diverse health research contexts, and propose a preliminary research agenda to support future learning in these critical areas.

Item Type: Article
Additional Information: Authors are organizers and participants in the Community Engagement and Consent Workshop, Kilifi, Kenya, March 2011 "Published as Consent and Community Engagement in diverse research contexts: Reviewing and developing research and practice; Journal of Empirical Research on Human Research Ethics: An International Journal; Vol. 8, No. 4 (pp. 1-18). © 2013 by the University of California Press. Copying and permissions notice: Authorization to copy this content beyond fair use (as specified in Sections 107 and 108 of the U. S. Copyright Law) for internal or personal use, or the internal or personal use of specific clients, is granted by the University of California Press for libraries and other users, provided that they are registered with and pay the specified fee via Rightslink® on [JSTOR (http://www.jstor.org/r/ucal)] or directly with the Copyright Clearance Center, http://www.copyright.com."
Subjects: W General Medicine. Health Professions > Health Services. Patients and Patient Advocacy > W 85 Patients. Attitude and compliance
W General Medicine. Health Professions > W 50 Medical ethics
WA Public Health > WA 20.5 Research (General)
Faculty: Department: Clinical Sciences & International Health > International Public Health Department
Digital Object Identifer (DOI): https://doi.org/10.1525/jer.2013.8.4.1
Related URLs:
Depositing User: Faye Moody
Date Deposited: 06 Dec 2013 10:28
Last Modified: 06 Feb 2018 13:06
URI: https://archive.lstmed.ac.uk/id/eprint/3506

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