Tools
Tools
Ngwira, Lucky-Gift, Khan, Kamran, Maheswaran, Hendramoorthy, Sande, Linda, Nyondo-Mipando, Linda, Smith, Sarah C., Petrou, Stavros and Niessen, Louis 
ORCID: https://orcid.org/0000-0002-8639-5191
(2021)
'A systematic literature review of preference-based health related
quality-of-life measures applied and validated for use in childhood and adolescent populations in sub-Saharan
Africa'. Value in Health Regional Issues, Vol 25, pp. 37-47.
|
Text
VIHRI-CEEWAA-2020-0085.R1_Proof_hi.pdf - Accepted Version Available under License Creative Commons Attribution Non-commercial No Derivatives. Download (724kB) | Preview |
Abstract
Objectives: Consideration of health status in children and adolescents now includes broader concepts such as health-related
quality-of-life (HRQoL). Globally, there is a need for relevant preference-based HRQoL measures (PBMs) for use in children
and adolescents, yet measurement of HRQoL in these groups presents particular challenges. This article systematically
reviews the available generic childhood PBMs and their application and cross-cultural validation in sub-Saharan African (sSA).
Methods: A systematic review of published literature from January 1, 1990, to February 8, 2017, was conducted using MEDLINE
(through OvidSP), EMBASE (OvidSP), EconLit (EBSCOhost), PsycINFO, Web of Science, and PubMed.
Results: A total of 220 full-text articles were included in a qualitative synthesis. Ten generic childhood PBMs were identified,
of which 9 were adapted from adult versions and only 1 was developed specifically for children. None of the measures were
originally developed in sSA or other resource-constrained settings. The Health Utilities Index Mark 3 (HUI3) and the EQ-5D-Y
were the only measures that had been applied in sSA settings. Further, the HUI3 and the EQ-5D-Y were the only generic
childhood PBM that attempted to establish cross-cultural validation in sSA. Five of the 6 of these validation studies were
conducted using the EQ-5D-Y in a single country, South Africa.
Conclusions: The findings show that application of generic childhood PBMs in sSA settings has hitherto been limited to the
HUI3 and EQ-5D-Y. Most adaptations of existing measures take an absolutist approach, which assumes that measures can be
used across cultures. Nevertheless, there is also need to ensure linguistic and conceptual equivalence and undertake
validation across a range of sSA cultural contexts.
| Item Type: | Article |
|---|---|
| Subjects: | WA Public Health > Health Problems of Special Population Groups > WA 320 Child Welfare. Child Health Services. WA Public Health > Health Problems of Special Population Groups > WA 395 Health in developing countries WA Public Health > Statistics. Surveys > WA 950 Theory or methods of medical statistics. Epidemiologic methods WS Pediatrics > WS 100 General works |
| Faculty: Department: | Clinical Sciences & International Health > International Public Health Department Clinical Sciences & International Health > Clinical Sciences Department |
| Digital Object Identifer (DOI): | https://doi.org/10.1016/j.vhri.2020.11.009 |
| Depositing User: | Rachel Dominguez |
| Date Deposited: | 26 Mar 2021 15:21 |
| Last Modified: | 23 Mar 2022 02:02 |
| URI: | https://archive.lstmed.ac.uk/id/eprint/17351 |
Statistics
Actions (login required)
 |
Edit Item |