Reported impact of creativity in the Wakakosha (‘You’re Worth It’) internal stigma intervention for young people living with HIV in Harare, Zimbabwe

Heniff, Lauren, France, Nadine Ferris, Mavhu, Webster ORCID: https://orcid.org/0000-0003-1881-4398, Ramadan, Mohannad, Nyamwanza, Owen, Willis, Nicola, Crehan, Eimear, Chinembiri, Moud, Cheallaigh, Deirdre Ni, Nolan, Ann and Byrne, Elaine (2024) 'Reported impact of creativity in the Wakakosha (‘You’re Worth It’) internal stigma intervention for young people living with HIV in Harare, Zimbabwe'. PLOS Global Public Health, Vol 4, Issue 11.

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Abstract

Internal stigma (negative judgements towards oneself) continues to be a barrier to HIV treatment, management and care, and has global public health consequences. People living with HIV (PLHIV) who report internal stigma are less likely to seek care, adhere to treatment and can experience increased depression and lower quality of life. The Wakakosha (‘You’re Worth It’) programme sought to reduce internal stigma among young PLHIV using inquiry-based stress reduction (IBSR), a cognitive and awareness-based methodology. This sub-study focused on creativity, exploring how it promotes young PLHIV’s well-being. We analysed individual interviews (n = 14), focus groups (n = 3), poems (n = 5), songs (n = 2) and self-compassion letters (n = 38) and 23 activity journals from November 2021 to March 2022, utilising inductive thematic analysis to identify themes across the data. Creativity saturated the Wakakosha intervention through modalities such as drawing, colouring, body mapping, music and letter writing. These engaged participants and gave them a space in which to shift their internal stigmatising beliefs, and helped them in multiple ways including: facilitating emotional regulation, self-acceptance, self-compassion, self-worth and body positivity. Creativity also enhanced participants’ self-image and allowed them to see their own abilities. Music improved the therapeutic environment by helping participants focus, emote, retain messages and connect within the group setting. Letters to self/others allowed participants to let go of stigma towards themselves and the circumstances of their infection. Tools such as drawing and body mapping assisted participants with emotional recognition and expression. This sub-study provided insight into the potential of creativity, when integrated into an IBSR intervention, in counteracting internal stigma. Ongoing replication is needed to continue to evolve best practices for internal stigma interventions. Future work should use more structured and specific interviews with participants regarding their creative processes.

Item Type:	Article
Subjects:	WA Public Health > Health Problems of Special Population Groups > WA 305 Mental health of special population groups WC Communicable Diseases > Virus Diseases > Acquired Immunodeficiency Syndrome. HIV Infections > WC 503 Acquired immunodeficiency syndrome. HIV infections
Faculty: Department:	Clinical Sciences & International Health > International Public Health Department
Digital Object Identifer (DOI):	https://doi.org/10.1371/journal.pgph.0003909
SWORD Depositor:	JISC Pubrouter
Depositing User:	JISC Pubrouter
Date Deposited:	13 Nov 2024 13:02
Last Modified:	13 Nov 2024 13:02
URI:	https://archive.lstmed.ac.uk/id/eprint/25560

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