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Nyirenda, Deborah, Gooding, Kate 
ORCID: https://orcid.org/0000-0003-4926-0287, Lora, Wezzie, Kumwenda, Moses, McMorrow, Meredith, Everett, Dean and Desmond, Nicola ORCID: https://orcid.org/0000-0002-2874-8569
(2018)
'Complexities and dilemmas in community consultation on the design of a research project logo in Malawi.'. PLoS ONE, Vol 13, Issue 10, e0205737.
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journal.pone.0205737 - Kate Gooding.pdf - Published Version Available under License Creative Commons Public Domain Dedication. Download (654kB) | Preview |
Abstract
BACKGROUND
Community engagement on research design is widely highlighted as an important approach for ethical research. This article reports the experience of consulting with communities on the logo used for an influenza study in Malawi. The logo was designed for use on badges worn by study researchers, participant information sheets and other project documents, and could affect perceptions of the study and consequent engagement in the research.
METHODS
Four focus group discussions were conducted with populations targeted by the influenza study: pregnant women, people with HIV, mothers and community members. The focus groups incorporated a participatory matrix exercise focusing on key themes emerging from the discussions such as: attractiveness, comprehension, acceptability and suggestions for improvement. Findings from the focus groups were analyzed according to these key themes.
RESULTS
The consultation highlighted important benefits of discussion with communities on research design, including providing new perspectives and helping to avoid harm. For example, people living with HIV felt that one of the possible logos could increase stigma within communities. The experience also indicated potential challenges of consultation. In particular, there were contrasting perspectives among the groups, such that the consultation did not provide a clear answer about which logo should be selected.
CONCLUSIONS
Our experience adds to current evidence on community engagement by reporting on an area where there is less discussion of community consultation for design of a study logo. The consultation exercise reaffirmed the value of community engagement, but also the difficulty of relying on a brief consultation for decision-making in research design. Further ethical guidance is required on how to negotiate contradictory views during consultations.
| Item Type: | Article |
|---|---|
| Subjects: | W General Medicine. Health Professions > Health Services. Patients and Patient Advocacy > W 84 Health services. Delivery of health care W General Medicine. Health Professions > Professional practice > W88 Administrative work. Teaching. Research WA Public Health > Health Problems of Special Population Groups > WA 395 Health in developing countries |
| Faculty: Department: | Clinical Sciences & International Health > Clinical Sciences Department |
| Digital Object Identifer (DOI): | https://doi.org/10.1371/journal.pone.0205737 |
| Depositing User: | Stacy Murtagh |
| Date Deposited: | 24 Oct 2018 14:43 |
| Last Modified: | 25 Oct 2018 11:12 |
| URI: | https://archive.lstmed.ac.uk/id/eprint/9497 |
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